DAYTON, Ohio (WDTN) — Ectodermal dysplasia is a rare genetic disorder with over 200-subtypes, causing problems with teeth, skin hair, and most dangerously, not being able to sweat.

Today, 2 NEWS spoke with Julie Carroll who has been spreading awareness across the Miami Valley for years following her son Alex’s diagnosis as a baby. His subtype is considered one of the rarest.

Find out how you can take part in a charity run to help support those living with a rare genetic disease.